Food Allergy Care Package

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Have you ever received a care package while at away at school?

Remember the cookies, candy or personal notes?

Sorry, no food here since we are dealing with food allergies, however I hope that some of these resources will be helpful along your journey.

It may seem like a long time between your initial allergy appointment and your first follow up appointment (it seemed an eternity for me when my oldest son was diagnosed).  Even if you have been dealing with food allergies for years, you may find some of these resources helpful during transitions and different phases of your journey.

When your child has been diagnosed with food allergies, the diagnosis and management can be overwhelming. Please realize that you are not alone! According to FAAN, 12 million Americans have food allergies including 3 million children. While it can be frightening and frustrating, it is doable. With time and education, hopefully the management will become easier and stress levels will decrease.

Accurate diagnosis and education are key. Make sure that a qualified physician, often an allergist, has diagnosed your child. Carry at least 2 EpiPens (full strength or Jr.) and carefully read ALL food labels. Learn as much as you can about food allergies and allergic reactions including prevention, recognition and treatment.  Educate family, friends and anyone with whom your child interacts.

There are many resources to help you, your child and your family /friends deal with the daily challenges of living with food allergies. Here are a few that I have found helpful. I call it my “food allergy care package”.

Please realize that this is a partial list.  I have not read all of the food allergy books and each month new wonderful resources are being published and established online.  Feel free to add any resources you have written or found helpful.  Until next time…

Safety through education,

Donna

ORGANIZATIONS

FOOD ALLERGY AND ANAPHYLAXIS NETWORK (FAAN)
www.foodallergy.org

provides advocacy and education, free allergy alerts via email of food recalls
educational tools for children, parents, school system, annual conference

MEDICALERT
www.medicalert.org

Medic alert bracelets, necklaces etc. with your child’s identification number on the back which allows emergency personnel to contact you and obtain allergy information if you are not present

DEY PHARMA -EPIPEN

http://www.epipen.com/

video on how to use the EpiPen (can email to family and friends)

FOOD ALLERGY INITIATIVE
www.foodallergyinitiative.org
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excellent source of information concerning multiple food allergies, funds food allergy research

ONLINE SUPPORT

PEANUT ALLERGY.COM
www.peanutallergy.com

parent run website with many discussion boards

KIDS WITH FOOD ALLERGIES

http://www.kidswithfoodallergies.org/

online food allergy support group

ALLERGY MOMS

http://allergymoms.com/index.php

support for parents of kids with food allergies

LOCAL SUPPORT GROUP LOOKUP
(FAAN) http://www.foodallergy.org/page/support-groups-lookup

ADULT RESOURCES

DVD
(FAAN) DVD-One Bite Is All It Takes!
great to share with spouse, babysitters, daycare providers, teachers, grandparents etc.

BOOKS /PAMPHLETS
Food Allergies for Dummies by Dr. Robert Wood

The Parent’s Guide to Food Allergies: Clear and Complete Advice from the Experts on Raising Your Food Allergic Child by Marianne S. Barber, Maryanne Bartoszek Scott (Contributor), Elinor Greenberg, Hugh A. Sampson

The Peanut Allergy Answer Book by Michael C. Young MD

What’s to Eat? The Milk-Free, Egg-Free, Nut-Free Food Allergy Cookbook by Linda Marienhoff Coss

The Food Allergy Mama’s Baking Book

(FAAN ) Pamphlet – Getting Started With Food Allergies: A Guide for Parents

CHILDREN’S RESOURCES

YOUNG CHILDREN’S BOOKS

Allie the Allergic Elephant : A Children’s Story of Peanut Allergies by Nicole S. Smith

Chad the Allergic Chipmunk: A Children’s Story of Nut Allergies by Nicole Smith

No Nuts For Me by Aaron Zevy

The BugaBees Friends With Food Allergies by Amy Recob

The Peanut-Free Café by Gloria Koster

One of the Gang  by Gina Clowes

No Lobster, Please! by Robyn Rogers

Cody the Allergic Cow: A Children’s Story of Milk Allergies by Nicole Smith

Mommy, Is This Safe to Eat? For Kids Allergic to Peanuts and Tree Nuts, 2nd Edition by Christina Black

Taking Food Allergies to School (Special Kids in School) by Ellen Weiner

(FAAN) Alexander, the Elephant Who Couldn’t Eat Peanuts (series)

(FAAN) How Lenny Found Out About His Food Allergy

(FAAN) Anthony Goes to a Restaurant

YOUNG CHILDREN’S DVDs

(FAAN) DVD Alexander the Elephant

(FAAN) DVD Alexander the Elephant Goes to School

OLDER CHILDREN’S BOOKS

The Peanut Butter Jam by Elizabeth Sussman Nassau

(FAAN) Kim Goes to Camp

(FAAN) Andrew and Maya Learn About Food Allergies

OLDER CHILDREN’S DVDs

(FAAN) DVD Friends Helping Friends: Make It Your Goal!

CHILDREN’S WEBSITE

(FAAN) www.fankids.org

TEEN WEBSITE

(FAAN) http://www.faanteen.org

SCHOOL RELATED SITES

NATIONAL SCHOOL FOOD ALLERGY GUIDELINES -will be created

http://www.foodallergy.org/page/food-allergy-and-anaphylaxis-management-act-becomes-law

STATEWIDE GUIDELINES FOR SCHOOLS

(FAAN) http://www.foodallergy.org/page/statewide-guidelines-for-schools

FAAN

www.foodallergy.org

section on managing food allergies in school

reproducible Food Allergy Action Plans for your child’s classroom

Safe@School Program

School Food Allergy Program (SFAP)

Off to School With Food Allergies, Teacher’s Guide (booklet)

Off to School With Food Allergies, Parent/Teacher (booklet)

MASSACHUSETTS DEPARTMENT OF EDUCATION

http://www.doe.mass.edu/cnp/2002/news/allergy.pdf

PDF document on Managing Life Threatening Food Allergies in Schools

FOOD ALLERGY TASK FORCE – SPOKANE WASHINGTON

http://home.comcast.net/~ifast/FATF.pdf

PDF document on Managing Life Threatening Food Allergies in Schools

CALGARY ALLERGY NETWORK

http://www.calgaryallergy.ca/article.html

numerous school related articles including parents, students and teacher’s guides, sample letters etc.

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6 Responses to Food Allergy Care Package

  1. if you can add my site to this list i will be glad about it.

  2. Thanks for this wondeful post. i just wish many could read this for them to know.

  3. Nancy says:

    Thanks for the share!
    Nancy.R

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